Multi-Disciplinary Tuberous Sclerosis Program was started with the
belief that children with Tuberous Sclerosis Complex (TSC) can benefit
from care that is specially tailored to their needs. Even though the
problems with the brain, heart, kidney and other organs seen in TSC
are also found in other diseases, their diagnosis and treatment may
be specific to TSC.
The Multi-Disciplinary
Tuberous Sclerosis Program at Children's Hospital is a team of pediatric
specialists, who are dedicated to providing coordinated care for the
TSC patients with multi-system problems. We have expertise in the
areas of epilepsy, neurosurgery, neuro-psychology, cardiology, nephrology,
ophthalmology, dermatology and genetics.
Our program is
directed by a child neurologist and a nurse coordinator in the Department
of Neurology. Patients are seen by specialists with the expertise
that is appropriate for their particular symptoms. To learn more about
each of the specialists, please see the faculty on this website.
Recently, we've expanded our program to include a licensed Genetic Counselor. We also have an Educational Consultant who helps support families in their child's educational needs. Learn more.
The purpose of
our program is not to replace but to assist the child's pediatrician
with the management of the different aspects of TSC that can affect
their patients life. We work closely with the child's pediatrician
to ensure that each patient gets individually tailored care for all
of his or her needs.
To make an appointment
for a patient to be seen in our Multi-Disciplinary Tuberous Sclerosis Program, please call
617-355-8994.
For additional information regarding our research programs, please contact our study coordinators:
