Family To Family Program

Resources for Families

1) Family to Family Program

Please contact Mrs. Karin Sullivan, via e-mail at mrsgumby56@comcast.net or by phone at (508) 697-1527

2) Tuberous Sclerosis Alliance

The Tuberous Sclerosis Alliance (TS Alliance) is a national organization dedicated to finding a cure for tuberous sclerosis while improving the lives of those affected.

3) Online Discussion Groups

Discussion groups offered by the TS Alliance for individuals and family members affected by tuberous sclerosis.

4) Teacher's Guide to Educating a Child with Tuberous Sclerosis Complex

Created by the TS Alliance to inform teachers about the educational needs of individuals with tuberous sclerosis.

5) The National Dissemination Center for Children with Disabilities

State-specific information on resources available for children with disabilities.

6) NINDS Tuberous Sclerosis Information Page

A fact sheet about tuberous sclerosis created by the National Institutes of Neurological Disorders and Stroke (NINDS).

7) The Tuberous Sclerosis Association (UK)

UK charity that supports individuals, promotes awareness, and seeks the causes and best possible management of tuberous sclerosis.

8) Genetic Alliance Information Sheet on Tuberous Sclerosis

A nonprofit committed to transforming health through genetics by creating partnerships through patients, families, organizations, corporations and government agencies.

9) Federation for Children with Special Needs (Massachusetts)

The Federation is a center for parents and parent organizations to work together on behalf of children with special needs and their families.

10) Understanding the Special Education Process

A guide to understanding the special education process, produced by the Federation for Children with Special Needs.

11) Autism Consortium Resource Database of Autism Related Programs and Services

Listing of resources for families and clinicians in the New England area to facilitate greater access to services and programs related to autism spectrum disorders.